TY - CONF T1 - Design Considerations for Semi-Automated Tracking: Self-Care Plans in Spinal Cord Injury T2 - Proceedings of Pervasive Health 2017 Y1 - 2017 A1 - Büyüktür, Ayşe G. A1 - Mark S. Ackerman A1 - Mark W. Newman A1 - Hung, Pei-Yao KW - medical informatics; patient-centered care; health IT; self-care plans; self-monitoring; semi-automated tracking; quantified self; context-aware environments; disability; rehabilitation; requirements; user needs; healthcare; healthcare IT AB -

Self-care in Spinal Cord Injury (SCI) is highly complex and individualized. Patients struggle to adapt to life with SCI, especially when they go home after rehabilitation. We conducted a field study to understand how self-care plans work for patients in their lived experience and what requirements there might be for an augmentative system. We found that patients develop their own self-care plans over time, and that routinization plays a key role in SCI self-care. Importantly, self-care activities exist in different states of routinization that have implications for the technological support that should be provided. Our findings suggest that self-care can be supported by different types of semi-automated tracking that account for the different routinization of activities, the collaborative nature of care, and the life-long, dynamic nature of this condition. The findings from our study also extend recent guidelines for semi-automated tracking in health

JF - Proceedings of Pervasive Health 2017 ER -