TY - CONF T1 - Information Work in Bone Marrow Transplant: Reducing Misalignment of Perspectives T2 - Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing Y1 - 2017 A1 - Büyüktür, Ayşe G. A1 - Ackerman, Mark S. KW - articulation work KW - bone marrow transplant KW - caregiving KW - chronic illness KW - collaboration KW - health informatics KW - information overload KW - information work KW - medical informatics. KW - patient help KW - patient information KW - temporal misalignment KW - temporality AB -

Patients are often overwhelmed in their efforts to understand their illnesses and determine what actions to take. In this paper, we want to show why care is sometimes not co-managed well between clinicians and patients, and the necessary information is often not well coordinated. Through a 2.5-year field study of an adult bone marrow transplant (BMT) clinic, we show there are different experiences of temporal ordering, or temporalities, between clinicians and patients (and their caregivers). We also show that misalignments between these temporalities can seriously affect the articulation (coordination) and information work that must go on for people to co-manage their conditions with clinicians. As one example, information flows can be misaligned, as a result of differing temporalities, causing sometimes an overwhelming amount of information to be presented and sometimes a lack of properly contextualized information. We also argue that these misalignments in temporalities, important in medicine, are a general coordination problem.

JF - Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing SN - 978-1-4503-4335-0 UR - Complete ER - TY - JOUR T1 - Issues and opportunities in transitions from speciality care: a field study of bone marrow transplant JF - Behaviour & Information Technology Y1 - 2015 A1 - Ayse G Büyüktür A1 - Mark S. Ackerman KW - chronic illness KW - continuity of care KW - expertise sharing KW - health informatics KW - healthcare KW - medical informatics KW - medical work KW - patient information KW - speciality transition AB -

Transitional points in patient care, such as handoffs and hospital discharges, are known to have unique information challenges. Transitions following long-term care involve even more complex processes. In this study, we examine the informational and contextual issues for patients transitioning from the care of specialists who have come to know them through long-term partnerships to clinicians potentially less familiar with patients’ chronic care concerns. The context is bone marrow transplant (BMT); specifically allogeneic transplants, which involve risk for particular chronic complications and a long-term process that requires close monitoring of patients by BMT specialists for at least a year beyond the actual transplant procedure. Based on a 16-month field study, we examine patient experience and clinician viewpoints regarding the transition of patient responsibility from BMT clinicians to primary care or oncologists, and detail the important issues for patients and clinicians.

VL - 34 UR - Complete-OnlyDOI ER -